Databases for Pediatric and Congenital Cardiac Care
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Databases for Pediatric and Congenital Cardiac Care- Key Points
- Introduction
- Summary
- References
- Nomenclature
- A. History of the Development of The International Pediatric and Congenital Cardiac Code (IPCCC)
- B. Clinical Nomenclature versus Administrative Nomenclature
- Database
- Risk Adjustment
- A. The Aristotle Basic Complexity Levels (ABC Levels)
- B. The Risk Adjustment for Congenital Heart Surgery (RACHS-1) Categories
- C. The STAT Mortality Categories
- D. Outcomes other than Mortality
- E. Risk Stratification versus Risk Modelling
- F. The Future of Risk Stratification and Risk Modelling for Pediatric and Congenital Cardiac Surgery
- G. Machine Learning in the Analysis of Outcomes After Pediatric and Congenital Cardiac Surgery
- Verification of the Completeness and Accuracy of the Data
- Collaboration Across Medical and Surgical Subspecialties
- Linking of Databases and Registries
- Longitudinal Follow-Up
- Assessment and Improvement of Quality
Table of Contents
Nomenclature for Pediatric and Congenital Cardiac Care: Unification of Clinical and Administrative Nomenclature
Acquired Cardiac Disease in Neonates, Infants, and Children
Jeffrey P. Jacobs, MD, FACS, FACC, FCCP
Anesthesia for Pediatric and Congenital Cardiac Care
Coarctation of the Aorta (CoA)
Pediatric Cardiac Tumors
Ethical Issues in Pediatric and Congenital Cardiac Surgery
Ventricular Septal Defects (VSD)
Hypothermia and Cardiopulmonary Bypass (CPB)
Surgical Management of Ebstein Malformation of the Tricuspid Valve
Intensive Care of Patients with Pediatric and Congenital Heart Disease
Engaging Patients and Families in their Pediatric and Congenital Cardiac Care
Anomalies of Pulmonary Venous Connection and Cor Triatriatum
Extracorporeal Membrane Oxygenation (ECMO)
Cardiac Transplantation for Pediatric and Congenital Cardiac Disease
Aortopulmonary Window (AP Window)
Atrioventricular Septal Defects (AVSD) (Atrioventricular Canal Defects) (Endocardial Cushion Defects)
Quality Measurement in Cardiac Surgery
Transposition of the Great Arteries with Intact Ventricular Septum (TGA-IVS)
Common Arterial Trunk (Truncus Arteriosus)
Congenital Anomalies of the Mitral Valve
Congenital Anomalies: Vascular Rings
Surgery for Adults with Congenital Heart Disease (ACHD)
Interrupted Aortic Arch (IAA)
Hybrid Approaches to Pediatric and Congenital Cardiac Care
Management of Cardiac Rhythm Disorders in Congenital Heart Disease
Blood Conservation in Cardiac Surgery - Managing Risks and Benefits
Tetralogy of Fallot (ToF)
Congenitally Corrected Transposition of the Great Arteries (ccTGA)
Unbalanced Atrioventricular (AV) Canal Defects
Patent Ductus Arteriosus (PDA)
Pediatric Mechanical Circulatory Support
Transposition of the Great Arteries with Ventricular Septal Defect (TGA-VSD) with or without Left Ventricular Outflow Tract Obstruction (LVOTO)
Double Outlet Right Ventricle (DORV)
Prenatal Intervention for Congenital Diaphragmatic Hernia
Functionally Univentricular Heart (Single Ventricle)
Hypoplastic Left Heart Syndrome (HLHS)
Pulmonary Valvar Stenosis and Pulmonary Valvar Atresia with Intact Ventricular Septum (PA-IVS)
Pulmonary Atresia with Ventricular Septal Defect and Major Aortopulmonary Collateral Arteries (PA-VSD-MAPCA[s])
Atrial Septal Defects (ASD)
Pulmonary Valve Replacement
Congenital Coronary Artery Anomalies
Congenital Anomalies of the Aortic Root
Cardiac Pathology
Lung Transplantation